Sunday, August 30, 2009
Friday, August 28, 2009
Thursday, August 20, 2009
Saturday, August 15, 2009
Although this whole NICU thing is a real buzz kill we do have our good times. We spend our days and evenings with our girl. As she has gotten bigger and stronger we are able to hold her more and do more of her everyday care. In addition to changing her diaper, taking her temperature, and getting her dressed and undressed we now give her a bath every few days (ok Shazam gave her a bath I just supervised) and take her in and out of her isolette.We also get to feed her! I nurse her most of the feedings that we are at the NICU for and the nurses are starting to try bottles with her when we are not there. Today we went and grabbed a snack at a local establishment and I had a glass of wine (gasp if you want but I really needed it and quite frankly think I deserve one!). Since I didn't want to nurse Ella post Pinot Noir we decided to let Sue give Ella a bottle. This was bottle number 2 but we have no photographic evidence since Mommy G forgot to take a picture (sorry Mommy A). Also we will not be posting any breastfeeding pictures. But here is my favorite two girls working on taking a bottle (she drank 18 mls, more than half the feed the rest she got through her gavage tube).
Wednesday, August 12, 2009
I guess that is what gives me the most pain and sadness. I am mourning the loss of having our newborn home with us. I mourn this loss so many times a day and night. Every time I have to call the hospital to see how her night was, I mourn this loss. Every time I sit with my pump alone dreaming of the time when I will sit on the couch nursing Ella deep in the night, I mourn this loss. Every time I kiss Ella goodnight and have to leave her at the hospital, I mourn this loss. Every timeI watch the families get wheeled down to the hospital entrance with their baby on their way home as I sit with a diaper bag and no baby waiting for our car, I mourn this loss.
I know that one day it will be Shazam and I with a baby in the car seat going home but after all that has happened between July 8th and now it will just won't be the same...and it makes me sad.
Sunday, August 9, 2009
Like all parents who are about a month in we are starting to get a little bit of a routine in. We get up in the morning and try to get something done (we are more successful at this on some days not so much on others). We then get ourselves going and get to the hospital at about 1:30pm. We like to be there for at least 2 of Ella's care times where she is fed, diapered, temped, and examined. We get to do the temping and diapers and change her clothes. The nurse sets up her feeds and checks to make sure all systems are good. Since Ella is doing so well we have been able to take her out of her isolette 2 times a day!
Another step on the road home is that Ella has started non nutritive nursing once a day. Which means that I put her to breast once a day and let her fool around and get used to nursing. She isn't getting much milk if any but she is latching on and sucking which is great. She also only had one spell the first day while nursing another good sign. She is a big fan of her pacifier and roots towards the breast when we hold her (regardless to which Mom is holding her).
Ella is also doing much better on her spells. One of the residents told us yesterday that she seemed to have "turned a corner" with her spells. The are much less severe and and she had only 2 on her flow chart yesterday when we left at 9 pm. This is a great improvement and she didn't have any while we were there yesterday! It is so nice not to have her alarms going off all the time. She used to spell a couple of times each feeding now this is becoming more and more rare. Since she has to be 5 days spell free to go home we are hoping that she continues to improve and grows out of the "habit" soon. There are several people that are on spell counts where they were all ready to go home and then spell so they have to stay another 5 days. It is so frustrating for the parents who just want to take their baby home and feel like they are so close only to have it snatched away. Cross you fingers that we don't have to play that game and Ella's spells resolve before we are thinking about going home.
Ella still has some big things to get done before we can even think about taking her home. In addition to having no spells for 5 days, Ella needs to take all her feeds by mouth and keep her body temperature up in room air. Ella has met none of these criteria but is working towards all these goals each day. Her isolette temperature gets lowered every other day and is now at 80.2 (down from the 90s when she was born) they will lower it slowly until it is room temp. and she can move to an open crib. She also has to figure out how to eat (which is not small job).
Baby steps for Baby Ella. It is a long road home but we will make it there we just need to give the girl some time.