Sunday, July 26, 2009

About the same

So Ella is holding her own for the most part. She has lost weight over the last few days. This following several days of gain. This is so frustrating. She did stop receiving IV fluids and nutrition so I think this is probably why. They will be increasing her feeds and calories and I hope that helps with her weight gain. I can't wait for her to be on the flip side of 3 lbs. I don't think that will happen for the next few weeks though. One step forward 2 steps back, or so it seems here in the NICU.

Ella's spells (drop in heart rate under 100 bpm) seem to be reducing. She had only a few quick dips last night. She seems to be having them at the ends of her feeds so they may be switching her over to feeds every 3 hours instead of every 4. This will mean smaller meals at greater intervals. This could help with the spells since her belly won't get as full and may allow her to digest her food better. It will mean more care times which disrupt her and take away from her sleep. There are pros and cons to both options. We will see what the Drs decided when we go in this afternoon.

Last night we got to give Ella a sponge bath. It was really fun and it was nice to see her in all her naked glory. The nurse took all her leads off so she only had her g tube and no other wires or tubes. She seemed more like a regular baby (just one with no ass). Now that she doesn't have her IV in she will be able to have a tub bath next time. I can't wait.

Ella is still in the intensive nursery. They had been talking about moving her to the intermediate nursery on Friday. They have not mentioned it again so I am not sure what the status of a move is. The nursery she is in is extremely busy with some really sick kids in there. The intermediate nursery has fewer babies and less needy ones. Ella is one of the healthier ones and I would love for her to get healthy enough to move. Once she is stable for a while in the intermediate nursery we could start considering moving Ella to Newton Wellesley Hospital. This will be a hard decision since we really trust the Drs and nurses at the Brigham. It will be hard to move but would be so much more easier to visit her since it is about 5 min from our house. I shouldn't get ahead of myself though. We will cross that bridge when we get there and we are at least a week or two away from that anyway.

Shazam and I are trying to hang in there but this is a grind and we both are not sleeping. It takes us both hours to fall asleep and then when we finally do the alarm rings for me to pump. Then we repeat. It will all be worth it when Ella gets home to us and I am producing tons of milk so that is good. I in fact have had to start freezing milk at home as my hospital space is full. This is good since Ella will probably come home only taking 2 feedings a day by breast and the the other feedings will be bottles of enriched breast milk. It will be good to have a stock of pumped milk when we have Ella home.

Well I have to jump in the shower so I can go visit the girl.


Kennedy said...

She is so beautiful! Hope she picks up the weight gain again.

Snickollet said...

Look at your gorgeous girl! Things may seem status quo, but it looks like she's growing up to me. And you killed me with that "no ass" comment. Ha.

Anonymous said...

Ella is positively beautiful! BGG here, and I think of you often. My gf works at the Brig and when I picked her up the other day I couldn't help but to wonder whether you were there. I showed her the blog back when Ella was first born and asked were the NICU was in comparison to her part of the hospital. She mentioned something about boundaries and the word 'stalker' may have come up. But I would love to support you somehow. Please know that lots of well-wishing is coming from between the Shapiro building and the rest of the hospital where I park when I pick Gf up.

SupersammyG said...

Bgg...your coment made me laugh out loud...stalk all you want. We love that you are thinking of us.