Then we have the ups and downs of Ella doing well one day and perhaps some set-backs the next. From what we've read and heard this is normal but it is going to take a while for us to get used to that. We had a family meeting with the attending, nurse, and others to go over where Ella is and what they forsee in the next week. SSG is much better at the details but in a nutshell the attending (who we call Dr. Smartypants because she is clearly brilliant) isn't happy with Ella's spells where she forgets to breath which then makes her heart rate drop. While she is off the c-pap assistance now she may have to go back on it to help with the spells. It's basically air forced through her nose that keeps her lungs inflated. They also detected a heart murmur again and the echo revealed that the cause of the original murmur is resolved this is a different original. Apparently though it's normal and they don't treat it so it should go away. She is doing okay with her feedings though she has had some set-backs...again to be expected. The good news is she has gained some weight and is at 2 pounds 8 ounces (she was born at 2 pounds 5 ounces).
She is hanging in there for sure but she's little so we have to be patient. This is the hardest part. It's exhausting worrying all the time and we are doing our best to stay positive while being realistic.
Thank you to everyone's good thoughts and prayers...keep them coming!